Neurological Disease Working Group
AfPA’s Neurological Disease Working Group is a network of policy-minded health care providers who advocate for patient-centered care.
By participating in advocacy initiatives and the development of educational resources, working group members ensure that the clinician’s perspective informs policy discussions that impact health care for people living with neurological diseases.
To learn more, or to join AfPA’s Neurological Disease Working Group, please email info@allianceforpatientaccess.org.
TAKE ACTION: ICER’s Review on Alzheimer’s Treatment
The Institute for Clinical and Economic Review, or ICER, is reviewing a new treatment for Alzheimer’s disease. ICER’s upcoming review will examine a medication, Aducanumab, that could be the first disease modifying treatment approved to treat Alzheimer’s disease.
ICER’s reports can influence health plans’ decisions about coverage. Input from advocacy organizations, health care providers and patients is critical. Get involved here >>
Resources
White Papers & Policy Briefs
- Telemedicine: A Position Statement
Alliance for Patient Access, July 2020 - Why Medicare Matters for Movement Disorders
Movement Disorders Policy Coalition, June 2020 - In Conversation: A Physician Discusses COVID-19 and Telemedicine
Alliance for Patient Access, April 2020 - In Conversation: A Physician Discusses COVID-19 and Insurance Prior Authorization
Alliance for Patient Access, April 2020 - High Out-of-Pocket Costs: A Position Statement
Alliance for Patient Access, July 2019 - Non-Medical Switching: A Position Statement
Alliance for Patient Access, July 2019 - Co-Pay Accumulator Programs: A Position Statement
Alliance for Patient Access, May 2019 - Prior Authorization: A Position Statement
Alliance for Patient Access, April 2019 - A Study of the Qualitative Impact of Non-Medical Switching | Abstract
Alliance for Patient Access, February 2019 - Step Therapy: A Position Statement
Alliance for Patient Access, January 2019 - Botulinum Neurotoxins and Non-Medical Switching
Institute for Patient Access, December 2018 - Co-pay Accumulator Programs: What Can Policymakers do to Protect Patients?
Institute for Patient Access, August 2018 - Co-pay Accumulator Adjustment Programs
Institute for Patient Access, June 2018 - Movement Disorders: Impact and Access to Treatment
A white paper from the Movement Disorders Policy Coalition, October 2017 - Protecting Patient Access to Treatments for Neurodegenerative Diseases
A White Paper from the Physicians Neurodegenerative Disease Working Group, October 2016 - Medication for Long-Term Care Residents: Reducing Overuse Without Compromising Access and Care
A Health Policy Brief from the Institute for Patient Access, January 2016
Videos
- Why Health Care Providers Should Care About ICER
Institute for Patient Access, October 2019 - Understanding Tardive Dyskinesia | Mental Illness Awareness Week
Movement Disorders Policy Coalition, October 2019 - Medication Use in Long-Term Care Facilities
Alliance for Patient Access, August 2019 - Non-Medical Switching Hurts Patients
Alliance for Patient Access, March 2019 - Non-Medical Switching of Neurotoxins
Alliance for Patient Access, February 2019 - The Co-Pay Surprise
Alliance for Patient Access, May 2018
Infographics
- How Excessive Prior Authorization Hurts Patients
Alliance for Patient Access - Non-Medical Switching & Neurological Care
- Alliance for Patient Access
- Insurance Reauthorization & Neurological Care
Alliance for Patient Access - Step Therapy & Neurological Care
Alliance for Patient Access - Prior Authorization & Neurological Care
Alliance for Patient Access - How Non-Medical Switching Hurts Patients
Alliance for Patient Access - Infographic: Why Medicare’s 6 Protected Classes Matter to Movement Disorders Patients
Movement Disorders Policy Coalition - Non-Medical Switching of Neurotoxins
Alliance for Patient Access - Why Medication Access Matters to Parkinson’s Patients
Movement Disorders Policy Coalition - The Connection Between Tardive Dyskinesia & Mental Health
Movement Disorders Policy Coalition - The Ugly Co-Pay Surprise
Alliance for Patient Access - What Puts Patients’ Epilepsy Medication Out of Reach
Alliance for Patient Access - What Keeps Patients’ Multiple Sclerosis Medications Out of Reach?
Alliance for Patient Access - Why Alzheimers and Parkinson’s Patients Need Clinical Trials Awareness
Alliance for Patient Access
Blogs